7 Clinical Trial Misconceptions Every Lupus Patient Should Know

Medicines can affect people differently and must be tested among each potential patient group— by race, gender, age, and ethnic background— so doctors can know how to use them safely and effectively. This is especially important for Black Americans, who are underrepresented in clinical trials and more likely to die from lupus than white people. Aside from the history Blacks have with clinical trials, the myths surrounding how clinical trials work often keep Blacks from participating.  Here are 7 myths you should ignore when it comes to clinical trials, according to the Lupus Research Alliance: Myth: If I want to join a trial, I will not be told anything about the trial or treatments I might take. Fact: Researchers are not allowed to give you treatment in a trial unless you fully understand what is going to happen. Before agreeing to be in a trial, the trial team will walk you through the process. You can ask questions about anything you want, like what treatment you might get, what happens during visits, what the potential risks and benefits are, and how long the trial might last. This process is called “informed consent.” Information about the trial will be provided in...