The Greatest Barrier to Black Folks in Clinical Trials? Not Being Asked to Join

Clinical trials have historically underrepresented Black people and other people of color. This lack of representation is concerning because these communities often experience higher rates and incidences of the diseases being studied. A survey conducted by the Patient Access Network (PAN) Foundation in conjunction with The Harris Poll found that while 83 percent of the respondents within these communities had a positive view of clinical trials, they had not participated in one.  This non-participation isn’t for lack of interest; it’s simply because they’ve not been asked. According to the survey, very few respondents have been approached by their health care providers with information about clinical trial enrollment.  While there has been mistrust of medical research in the past – which dates back several decades – 80 percent of people of color surveyed said that they view their health care providers in a positive light. However, only 22 percent of those individuals have had clinical trial participation discussions with their doctors.  This discrepancy highlights a troubling disconnect between available opportunities and the enrollment of minorities. It also indicates a significant need for health care providers to take the initiative in discussing clinical research trials with their minority patients.  Barriers and Motivations...