Why This Multiple Myeloma Survivor Advocates for Clinical Trials

PAN Foundation patient advocate Tony Newberne Black Americans have historically been misrepresented in the medical industry, often subjected to unequal treatment and exclusion from medical advancements. This disparity is why it’s important for medical professionals, researchers, policymakers and advocates like Tony Newberne are important because these conversations are what ensure that all communities receive fair and accurate care. In our conversation with Tony Newberne, he got candid about his multiple myeloma diagnosis, his journey with receiving care, and what he hopes to see in the future for the healthcare system. Tony Newberne is a 10+ year survivor of high-risk myeloma and is on continuous treatment regimens. He is a certified personal trainer, dietary manager, and patient advocate for several leading national nonprofit organizations, including the PAN Foundation. In his limited spare time, Tony enjoys spending quality time with his partner and pet Doberman, working in his vegetable garden, and watching a good Netflix series.  Here’s what Tony, a patient advocate for the PAN Foundation and multiple myeloma survivor shared about his journey:  BDO: Tony, I’d like to start from the beginning when you found out about your diagnosis. Could you share how you first learned that you had high-risk multiple...