I’ve Had 18 Surgeries, But I’m Still Standing Strong: ‘Faith Is My Anchor’

Parenting/ Health

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Photo courtesy of Antwan Winkfield Antwan Winkfield’s earliest memories are shrouded in the stories his family told him. As a baby, he was often inconsolable, and his mother initially thought he was simply a “crybaby.” However, his persistent crying was a sign of something more serious.  It was his grandmother who first noticed something unusual about his spine while bathing him. Concerned, she took him to the doctor, where they discovered a neurofibroma pressing against his vertebrae, causing significant pain and early signs of scoliosis. This diagnosis marked the beginning of a long journey with Neurofibromatosis Type 1 with Plexiform Neurofibromas (NF1-PN), a genetic condition in which tumors grow along the nerves, which can cause pain, mobility issues, severe disfigurement and reduced quality of life. Antwan had his first surgery at just two years old, and this was the start of many medical challenges. Growing up, Antwan’s family was his pillar of strength. When doctors predicted he wouldn’t live past eight years old, his family turned to their faith. His grandmother’s words of encouragement, telling him he was one of God’s soldiers and that faith would see him through, left a lasting impact. Antwan embraced this as a badge of...

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